Hear real life accounts:
This video was presented by the National Heart, Lung, and Blood Institute, part of the National Institutes of Health—Nicholas H. and his mother, Bridget, talk about life with sickle cell disease. Nicholas was diagnosed with sickle cell disease soon after he was born. He suffered from hand-feet syndrome as a baby and had his gallbladder and spleen removed at age 5. Penicillin, hydroxyurea, and other medicines have helped him and his family manage the illness and the severe pain crises that can result in hospitalization. Now 15 and an honor student in school, Nicholas enjoys "hanging out," listening to music, playing video games, wrestling and learning Brazilian jujitsu.
Diagnosed with sickle cell disease, Shaniya came to St. Jude Children’s Research Hospital when she was 5 years old. Now 16, she strives to be a normal teenager, one not defined by her disease. Teens with this family of blood disorders, which includes sickle cell anemia, face challenges when transitioning from adolescent to adult care. St. Jude is working to reverse that trend with education, research, and partnerships with adult care facilities.
This video was presented by the National Heart, Lung, and Blood Institute, part of the National Institutes of Health—shows how Tiffany, a mother, and student, has coped with having sickle cell disease. Born with the most severe form of sickle cell disease, sickle cell anemia, Tiffany has lived with the symptoms and complications of this disease her entire life. After giving birth to her daughter, Tiffany became very sick and was admitted to the hospital many times. In 2009, she began treatment with a medicine called hydroxyurea. Although Tiffany's brother had taken hydroxyurea and had many side effects, Tiffany has had success with the treatment. Her commitment to following her treatment plan and living a healthy lifestyle have helped her manage sickle cell anemia and live a happy, full life.
A teen shares his journey through sickle cell disease.